Tuesday, February 20, 2018

February 2018 update

I have seen my new rheum doc twice. The third time I was supposed to see him, I was shuffled to his PA without any forewarning. I wasn't really happy about it because I am essentially still a new patient. 

I have been Methotrexate free since the middle of November 2017. I stopped because I had surgery on 5 Dec 17. I was supposed to restart it on 19 Dec 17, but ended up getting sick. Then in January of this year, ended up with the flu. I actually feel better not being on it. My blood pressure has gone down (could also be because of the CPAP machine). This is really the first time in 7 or so years that I have not been on MTX. 

I was finally able to access my lab results from my first and second blood draw visits with the rheum. I am consistently on the border of anemia. The only marker that is elevated is my SED Rate. It did go up between November and the end of January, but nothing major. My RF came back non-existent and I am not HLA-B27 positive.

I still do Stelara, and the next dose is coming up in the next month. I am impressed with the medicine. My face, underarms, lower back, and other areas affected by Psoriasis are much better while I am on it.

My fatigue is still horrible. Even with the CPAP helping, there are days I just have a very hard time keeping my eyes open. Being my blood work showed I was either borderline or definitely anemic, I am going to add iron to my nightly regimen. 

Thank you for reading.